|Five minutes of your time today could mean a fighting chance for someone in need.
||[Oct. 14th, 2009|07:12 pm]
Master of Waffles
[This is a repost of something my friend Angela wrote up for the club she's in. She's a med student, so you can trust her with your life. I think.]|
Five minutes of your time today could mean a fighting chance for someone in need. Please help the Asian Pacific American Medical Student Association register Asians for the National Bone Marrow Registry!
Janet Liang, a 22 year-old UCLA student, and Matthew Nguyen, a 27 year old Vietnamese pharmacy student, both need bone marrow transplants. But their fight against cancer and the search for a bone marrow donor are difficult because Janet is Chinese and Matthew is Vietnamese and there is a CRITICAL UNDERREPRESENTATION of ethnic minority and mixed donors in the registry. Janet and Matthew need your help, 5 minutes of your time, so you can gain the power to save their lives.
Joining the Be the Match Registry online is FREE and EASY: http://join.marrow.org/SWAB4APAMSA.
REGISTRATION FEE IS WAIVED if you register by October 31st!!
When asked to provide a Promo Code, please enter "SWAB4APAMSA"
Ethnicity is the KEY FACTOR
Ethnic Minority Individuals are particularly encouraged and needed to join the registry. As it stands, only 30% of patients of Asian, Pacific Islander, Latino, Black/African American and Multi-Racial descent are able to find a match on the current database.
Donation is Simple
The majority of donations do not involve surgery. The patient's doctor most commonly requests a peripheral blood stem cell (PBSC) donation, which is non-surgical, similar to platelet donation, and does not require a stay in the hospital.
Janet Liang is a vibrant 22 year-old student at UCLA student who wanted to travel the world, study in Paris, and become a full time teacher, but her plans were stopped short when she was diagnosed with Acute Lymphoblastic Leukemia on August 24, 2009. Her only brother is not a bone marrow match and she hopes to find a match so that she “can reclaim [her] life.” Follow Janet’s video blog at: http://www.janetgliang.com/
Matthew Nguyen was like any other healthy vibrant 27 year-old, full of life and ready to take on the world, until he was unexpectedly diagnosed with Acute Myelogenous Leukemia in June 2007. He underwent chemotherapy for sixteen months, overcoming one complication after another, fighting for his life and ultimately reaching remission. Unfortunately, six months after his last round of chemotherapy, 3 days after he finished a 100-mile bicycling marathon, Matthew learned that he had relapsed. Everything is now put on hold again for Matthew, including school and marriage. www.teammatthew.org
Register to gain the power to save a life.
By joining the Registry, you give hope to patients everywhere with leukemia, lymphoma and a variety of other diseases. When you register as a bone marrow donor, you join a global movement of more than 12 million donors who stand ready to give someone a future. You may never be called upon to donate, but if you are, you and perhaps only you will have the power to save a life.
Registering is simple and takes as little as five minutes, and our online drive will allow you to register for free. You will be asked to fill out a basic form with your contact information and medical history (which remains protected), and then you will swab the insides of your cheeks with a kit that is mailed to your home. No blood draw is required. Cheek swabs are all that's needed to register. Five minutes of your time today could mean a lifetime for someone in need.
Additional ways you can help
SHARE Janet’s and Matthew's stories with your friends and family, especially those of minority background. With a few e-mail and phone calls, you can get the word out about the importance of registering.
Learn about the need for ethnic minority bone marrow donors from Yul Kwon: http://www.youtube.com/watch?v=pY2bX1S0VpA
Find a drive near you at http://marrow.org/JOIN/Join_in_Person/index.html
Myths and Facts about Bone Marrow Donation
MYTH: The bone marrow donation procedure is painful.
FACT: General or regional anesthesia is always used for this procedure. Donors feel no needle injections and no pain during marrow donation.
MYTH: All bone marrow donations involve surgery.
FACT: The majority of donations do not involve surgery. The patient's doctor most commonly requests a peripheral blood stem cell (PBSC) donation, which is non-surgical and does not require a stay in the hospital. If marrow is requested, it is a surgical procedure, but there is still usually no stay in the hospital.
MYTH: Pieces of bone are removed from the donor.
FACT: Pieces of bone are not removed from the donor in either type of donation. A PBSC donation involves taking the drug filgrastim for five days leading up to donation in order to increase the donor's needed blood-forming cells. On the fifth day, blood is taken from the donor through one arm, passed through a machine that separates out the blood-forming cells, and returned through the donor's other arm. In marrow donation, no pieces of bone are taken; only the liquid marrow found inside the bones is needed to save the patient's life.
MYTH: Donating bone marrow is dangerous and weakens the donor.
FACT: Though no medical procedure is without risk, there are rarely any long-term effects from donating. Only five percent or less of a donor's marrow is needed to save a life. After donation, the body replaces the donated marrow within four to six weeks. The NMDP screens all donors carefully to ensure they are healthy and that the procedure is safe. The NMDP also educates donors, answers questions at every step, and follows up after donation.
MYTH: Donors have to pay for the donation procedure.
FACT: Donors never pay for donating. All medical costs are paid by the patient's medical insurance or by the patient, sometimes with NMDP assistance. The NMDP reimburses donors for travel costs, and may reimburse other costs on a case-by-case basis.
Become an APAMSA Golden Crane for Hope.
You can save a life. Take the first step at www.BeTheMatch.org
Be The Match Registry is operated by the National Marrow Donor Program
[I'm not just a lazy plagiarizer. I registered. Join me, and TOGETHER WE CAN RULE THE GALAXY.]